I wanted to devote one entire blog post of this Pathological Demand Avoidance (PDA) series to share all of the websites and mentors and books and resources and podcasts that have been super influential in helping me learn about my Isla girl specifically when it comes to PDA.
BOOKS
“Understanding Pathological Demand Avoidance Syndrome in Children: A Guide for Parents, Teachers, and Other Professionals” by Phil Christie, Margaret Duncan, Ruth Fidler, and Zara Healy
This straightforward guide offers a complete overview of Pathological Demand Avoidance Syndrome (PDA) and gives practical advice for overcoming the difficulties it poses in a wide range of contexts from diagnosis through to adulthood. Starting with an exploration into the background of PDA that answers many of the immediate questions triggered when a child is first diagnosed, the book goes on to look at the impact of the condition on different areas of the child’s life and what can be done to help. The authors present useful information on early intervention options and workable strategies for managing PDA positively on a day-to-day basis. They also examine ways to minimize common difficulties that may be encountered at home and school, making life easier for the child, family and peers. The final chapters tackle new problems that can arise when the teenage years hit and how to assist a successful transition from adolescence to adulthood. Illustrative case examples are included throughout, and the book concludes with a list of valuable resources for further information and advice. Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for anyone caring for, or working with, children with PDA.
“PDA by PDA’ers: From Anxiety to Avoidance to Masking to Meltdowns” compiled by Sally Cat
This book is a unique window into adult Pathological Demand Avoidance (PDA), exploring the diversity of distinct PDA traits through the voices of over 70 people living with and affected by the condition.
Sally Cat, an adult with PDA, has successfully captured the essence of a popular online support group in book form, making the valuable insights available to a wider audience, and creating a much-needed resource for individuals and professionals. Candid discussions cover issues ranging from overload and meltdowns, to work, relationships and parenting. This is a fascinating and sometimes very moving read.
“Pathological Demand Avoidance Syndrome – My Daughter is Not Naughty” by Jane Sherwin
Jane Alison Sherwin’s honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA).
After years of misdiagnosis, Jane’s daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughter’s behaviour and the impact it has on her family, explaining the ‘why’ of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie.
Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.
“The PDA Paradox: The Highs and Lows of My Life on a Little-Known Part of the Autism Spectrum” by Harry Thompson
Diagnosed with Pathological Demand Avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol.
By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the “scenic route” in order to flourish and reach their full potential. The memoir brings to life Harry’s past experiences and feelings, from his torrid time at school to the peaceful and meaningful moments when he is alone with a book, writing or creating YouTube videos.
Eloquent and insightful, The PDA Paradox will bring readers to shock, laughter and tears through its overwhelming honesty. It is a turbulent memoir, but it ends with hope and a positive outlook to the future.
“Waiting for the Light Bulb: ramblings of a crazy, gritty mom” by (ME!) Dr. Lisa Peña
“Waiting for the Light Bulb” is a true story that follows the life of a little girl over the course of ten years. Told from a mother’s perspective, it begins with a pregnancy, high hopes and dreams for the future but as diagnoses are made the fear of the unknown is tangible. Follow a determined, gritty mother as she navigates the world with a daughter who has an incredibly unique subset of autism. Read as she learns how to maneuver her way through medical mediocrity, broken public school systems, past stigmas and preconceived notions of what a special needs child is like, and what an advocate entails. She is fierce and intelligent and realizes that gritty moms are sometimes not well received. Raw, witty and holding nothing back, this story will help you quickly learn not to judge a mother, a child, a family by the chapter you walk in on.
Websites
Both of these are ONE stop shops!
PDA Society
PDA North America
YouTube Channel
Harry Thompson, PDA Expert (YouTube Channel)
Podcast
Melissa Neff, Ph.D. is a clinical psychologist in private practice in Missoula, MT. She conducts psychological evaluations for children and adults. She specializes in the assessment of giftedness, ADHD, depression, anxiety, trauma, nonverbal learning disorder, and typical and atypical autism spectrum disorders.
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